Saturday, September 19, 2009

My Reality. By Cynthia.


My Reality. By Cynthia.

Today at 4:24pm Edit Note Delete
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: Type 1 Diabetes
2. I was diagnosed with it in the year: September 1997
3. But I had symptoms since: The previous summer
4. The biggest adjustment I’ve had to make is: Counting everything.
5. Most people assume: Diabetes is totally manageable and in your control. It's just that you can't eat sugar. Quite the opposite is true
6. The hardest part about mornings are: 195-277. Yuck. And then having to go to work and smile for teenagers.
7. My favorite medical TV show is: Huh?
8. A gadget I couldn’t live without is: DEXCOM
9. The hardest part about nights are: Nights.
10. Each day I take 10 shots and _4_ pills & 2 vitamins. i also insert a new sensor site every 7 days for my continuous glucose sensor.
11. Regarding alternative treatments: There is no alterantive. Just do it old school. Medicine and discipline thanks.
12. If I had to choose between an invisible illness or visible I would choose: NO thanks.
13. Regarding working and career: I have both. I work at diabetes and teaching is my career.
14. People would be surprised to know: How really, really, really hard it is. we make it look easy but each day invites a layer of gut wrenching truth about the D.
15. The hardest thing to accept about my new reality has been: scratch out "hardest" insert BEST. Then, the answer would be how to truly be healthy and know what that means.
16. Something I never thought I could do with my illness that I did was: Get it right.
17. The commercials about my illness: lame. I said it, LAME. and they are all about type 2 diabetes and quaker oats.
18. Something I really miss doing since I was diagnosed is: Not having to carry a bag or purse EVERYWHERE.
19. It was really hard to have to give up: is this where I am supposed to say "cake" or "candies"? It was really hard to give up a big piece of my own freedom and security. . That is something I can never have again. If I was stranded anywhere I would die. Even if there was food, water and shelter. That is always a strange feeling.
20. A new hobby I have taken up since my diagnosis is: poking fingers, injecting insulin, logging numbers on a computer, counting carbs, watching arrows, finding out information on every complication possible. Wanna join?
21. If I could have one day of feeling normal again I would: Be so excited to just do nothing and feel what it's like to feel normal for an entire 24 hours. That has not happened for 15 years.
22. My illness has taught me: time is interesting and timing is even more interesting.
23. Want to know a secret? One thing people say that gets under my skin is: "My Grandma has that too"
24. But I love it when people: try to learn about it and help me through my day. It's the little things.
25. My favorite motto, scripture, quote that gets me through tough times is: 121
26. When someone is diagnosed I’d like to tell them: You can be healthy
27. Something that has surprised me about living with an illness is: it keeps it interesting
28. The nicest thing someone did for me when I wasn’t feeling well was: fly to see me, push we around in a shopping cart so I could shop at Target (legs hurt). let me cry in frustration. then cried as well.
29. I’m involved with Invisible Illness Week because: so many people deal with so many "invisible" things
30. The fact that you read this list makes me feel: bad for you because you must be bored! Just kidding, thanks for caring

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